Advocacy Organizations

May 22, 2008 at 1:33 pm (Multiple Myeloma, Multiple Myeloma - 2. Advocacy Organizations) (, , , , )

Advocacy Organizations – Multiple Myeloma

International Myeloma Foundation (IMF)

http://myeloma.org/

The IMF is an international organization dedicated to improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF site offers Myeloma Manager, a way to track patient test results and other data, and Profiler, which helps patients make treatment decisions. The site offers many webcasts

Multiple Myeloma Research Foundation (MMRF)

http://www.multiplemyeloma.org/

The Multiple Myeloma Research Foundation (MMRF) was founded in 1998 by identical twin sisters Kathy Giusti and Karen Andrews shortly following Kathy’s diagnosis with multiple myeloma. The mission of the MMRF is to urgently and aggressively fund research that will lead to the development of new treatments for multiple myeloma.

You can find a wealth of quality-reviewed information on the MMRF site. The site also links to support groups, mentors, and clinical trials information.

Advocacy Organizations – General Cancer

American Cancer Society (ACS)

http://www.cancer.org/

The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. Headquartered in Atlanta, Georgia, the ACS has state divisions and more than 3,400 local offices.

ACS information on multiple myeloma is here: http://www.cancer.org/docroot/CRI/CRI_0.asp

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